December. Ahhh don’t you just love the BIG build up to the hustle and bustle of christmas?

Halloween. Bonfire night with fireworks and toffee apples. Cold and crisp mornings, crunchy leaves on the ground. Advent calendars, Elf on the Shelf, Christmas shopping?

Last year, things were very different in our house. Our Christmas build up this time around was a slightly sick feeling in our tummies. We had been given a date for Dixie’s complex needs assessment and it was smack bang in the middle of December. She was 6 months old.

The complex needs board had been requested by Dr community at Dixie’s previous appointment. It allowed a full board of professionals such as a physio, occupational therapist, speech therapist, developmental play therapist and Dr community to meet Dixie in a group setting to assess her needs for the future.

Scary stuff.

We met with a lovely specialist health visitor the week before, who spent several hours going through Dixie’s history, her development (or lack of) and exactly what to expect on the day.

I was so incredibly nervous. I wanted to go by myself. I felt like i needed to start handling things alone, rather than having a hand to hold. I was her mummy and i needed to be strong.

And i handled it. And my girl handled it too. I was so very proud of her. And when the first words that came out of Dr community’s mouth was how proud he felt seeing her progress from two months previous ‘as her doctor and as a father’ I knew she did good.

But we won’t get ahead of ourselves. Despite some small steps in progress, Dixie was still very behind her peers. It was no great shock that the outcome of that meeting was that Dixie would require the full support of the entire team. Our life was about to get a whole lot busier.

And then suddenly Christmas was upon us. The day itself was full of joy, present swapping, food and drink. It was lovely to have time away from the rollercoaster that had become our lives. We could pretend for just that short time that all was well. All was ‘normal’…whatever that means…

But then reality catches up to you when the 6+ month toys you’d bought don’t even get a look of interest. Not a reach for, a touch, a passing glance. Nor the 3+ month toys for that matter. And you can’t pretend any longer.

Right after Christmas I got a call from the X-ray department. My girl was offered a cancellation appointment for a VF ( a video swallow to you or I) Total and utter relief that we would FINALLY get concrete answers.

And just like that, we were back on that rollercoaster! Happy New Year!

Our Little Family – Christmas Day 2014




  1. Laura · September 22, 2015

    Aww what a tense time but so glad you had a lovely Christmas Day together xx

    Liked by 1 person

  2. Steve Cripwell · September 23, 2015

    Reblogged this on My Write and commented:
    Here is the next part of my daughter’s story of coping with Trysomy9


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