I saw this quote and it got me thinking. Do I have any of those ‘bones’?
Starting to blog and post on Facebook was HUGE for me. It took a lot of courage. After all I’m spilling my guts for all the world to see. Warts and all. Im putting us out there to be judged.
And its scary because deep down I’m a sensitive soul.
I care what people think. Too much. I like reassurance. That I’m making good decisions, the right decisions or that I’m just plain doing good. I worry I might say the wrong thing or the right thing the wrong way.
But I love to write. It helps me process things. And its nice to have people share our journey. Less lonely.
So I cracked on.
And I created my blog first. Then Dixie’s page followed. I sent out the invites to like her page and within minutes people were responding. It was really heartwarming as there was nothing on her page to see at that point.
I’d be lying if I hadn’t already made a mental list of those I assumed would follow us, follow her. Only thats not what happened at all. Those I thought of as our biggest supporters, have not shown a shred of interest. No cheerleading. No good job. No acknowledgment. Nada.
That bothers me.
It actually bothers me in so many ways, but mostly I just don’t understand why. It will be added up alongside the other life lesson I’ve learned along the way. Never assume!!
I understand we aren’t everyone’s cup of tea. Maybe they want to remain in their little bubble. Perhaps they don’t want our reality staring them in the face. Or maybe we’re not that interesting 😉
Whatever the reason. My skin will get thicker. And I will not take it personally. Because it probably isn’t. Mostly.
Then there is the positive side of all this. You guys. For every person who hasn’t cared, Dixie’s page had 10 more of you that do. Some total strangers, or friends of friends. And ok her page is still small but thats ok, because its doing its job. Its purpose.
Because ultimately, I started the blog, the page. The warts and all. For two reasons.
Reason one. To simply raise awareness. This world we entered over a year ago. This world of genetics and extra chromosomes, missing chromosomes, partials, deletions, mosaicism. It was nothing I had ever heard of before.
It was an eye opener. I felt lost, alone, unprepared. I didn’t know where to start. I was scared to join the groups at first. Fear of facing our reality.
Which leads me to reason two. To reach other parents going through the same thing. To show them Dixie without them having to make themselves known. To help those families feel less alone. To leave it in their corner to make contact if they needed to.
And I’m so happy to say that I’m already doing all I hoped. Even with my ‘small’ page, I am reaching families and my Dixie doo is helping them. She’s pretty amazeballs after all 😉
So going back to the quote above. THIS is my wishbone. I mean not entirely. But for right now, my wish is to carry on blogging and carry on helping.
My backbone needs a bit of work. But its growing stronger by the day.
Funnybone? I guess you would have to ask my friends!!